Engaging In Community Awareness



Author:  Paula Jackson Jones
Orig Published: 08/11/2017


As a nonprofit whose mission is to raise awareness, foster education, advocate for change and provide local support to Maine’s Lyme community, we truly enjoy engaging with the communities and hosting or participating in events that help further along knowledge of tick-borne disease. Plain and simple:  We enjoy helping people get better!
Tick-borne disease can be confusing to diagnose and even more difficult to treat. With a mindset that a tick bite causes only Lyme Disease, we are conditioned to look for the bulls-eye rash and if/when it does not present, we are left wondering why we feel so horrible. With testing that is unreliable, many continue to walk around infected and don’t even know it. Many have a different tick-borne disease all together or co-infections that were never addressed. It’s during these community times that we get one-on-one connection with people, sharing our experiences, listening to their stories and concerns and giving resources and direction. People want real answers, tangible results and they want restored hope that they can get better. Having been down that road and now in complete remission for over 3 years, this is as real as it gets.

We engage locally with people as much as possible because you can’t just go to the internet and get the answers. If anything, you come away feeling more confused and baffled by the variances among medical providers. Some go by a clinical examination, others strictly by testing, some follow outdated guidelines and treatment protocols while others stay up-to-date with the current protocols and treatment options. Some medical providers say you’re cured after 14days of antibiotics, while others understand the complexities of tick-borne diseases including delayed diagnosis and the potential need for longer treatment and supportive measure to rebuild.  Part of being out in the community and raising awareness and sharing information is educating people, empowering them to the options that are available to them and giving them control over their own health issues.



There are lots of avenues one can travel when ill, choosing from mainstream western medicine to alternative eastern medicine. The introduction of integrative medicine, using the best of both worlds, gives the patient the best possible outcome, from deciding which protocol to use to kill off an infection to implementing supportive medicines that help rebuild and strengthening. It’s allowed and accepted with other diseases ~ tick-borne disease should be no different.  We are fortunate to be networked with over 100 medical providers in Maine that are highly educated in tick-borne disease and that use a variety of treatment modalities. We like to say that seeing a provider that has a large tool box is your best bet as a patient to get better because there is no one size fits all approach to treating tick-borne disease and no two patients present alike. Symptoms and medical histories vary as well as genetics. Treating a patient with a tick-borne disease needs to be individualized and no one understands this better than MLDSE.


LOOK FOR US!! 
August 19-26, we will be at the Union Fair in the Exhibition Hall every day from 10a-4p.
In September, we’ll be at Tractor Supply in Brunswick (2nd) and at Applefest in Nobleboro (30th)
In October, find us at Autumnfest in Bath (7th) and in Augusta at the weekend long Snowmobile Trade Show at the Civic Center (20th-22th).

For medical providers who want to learn more about tick-borne disease, ILADS 2017 conference is in Boston, MA! visit ILADS.org for more information


As always, you can visit our website www.mldse.org for information about tick-borne disease, referrals to medical providers, and other support resources such as meetings and financial assistance.   It’s our pleasure to engage one-on-one with our local communities, addressing their needs and providing free resources. It’s what MLDSE is all about!

~ Paula

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